Barriers to Early Access of Palliative Care: Addressing Misconceptions and Stigma
\nPeter Necy
\nStudent ID:
\nIntroduction
\nPalliative care aims to improve quality of life for patients and families facing life-limiting illnesses through a holistic approach that addresses physical, psychological, social and spiritual needs (World Health Organization, 2022). Early integration of palliative care has been shown to benefit patients by effectively managing pain and other distressing symptoms, as well as supporting families during the illness trajectory and bereavement period (Temel et al., 2010). However, several barriers often prevent timely access and referral to palliative care services. Common misconceptions about the role and purpose of palliative care among patients and healthcare providers act as significant obstacles (Gott et al., 2013).
\nLiterature Review<\/p>\n
A frequent misconception is the perception that palliative care is only appropriate for end-of-life or hospice care (Gott et al., 2013; National Consensus Project for Quality Palliative Care, 2018). In reality, palliative care aims to improve quality of life throughout the illness experience, from initial diagnosis onwards (World Health Organization, 2022). Early involvement of palliative care teams has demonstrated benefits for patients living with chronic, life-limiting illnesses like cancer, heart failure, lung disease, and neurological disorders (Temel et al., 2010). Studies show early integration effectively manages pain and distressing symptoms while supporting psychological and spiritual wellbeing (National Institute for Health and Care Excellence, 2022; Temel et al., 2010).
\nAnother barrier is the stigma associated with palliative care due to its historical connections with death and dying (Gott et al., 2013; Palliative Care Australia, 2018). This prevents open discussion about needs and values, delaying referrals according to individual preferences. Sensitive conversations are needed to clarify palliative care\u2019s broader role in optimizing quality of life (National Consensus Project for Quality Palliative Care, 2018). Healthcare providers must also address their own misconceptions through ongoing education on current evidence-based palliative approaches (Palliative Care Australia, 2018).
\nNurses\u2019 Role
\nAs frontline providers, nurses are well-positioned to promote early palliative care access by addressing common misconceptions (Palliative Care Australia, 2018). They should engage patients and families in non-threatening, stigma-free conversations to assess holistic needs proactively. By clarifying misconceptions about palliative care\u2019s benefits throughout illness, nurses can make timely referrals according to individual communication preferences (National Consensus Project for Quality Palliative Care, 2018). They must also receive regular training to stay updated on palliative evidence and challenge their own preconceptions (Palliative Care Australia, 2018).
\nConclusion
\nIn summary, misconceptions regarding the role and purpose of palliative care act as barriers preventing early access and integration. Common misperceptions include associating palliative care only with end-of-life and the stigma surrounding discussions about death and dying. Nurses can help address this through sensitive conversations with patients and families to assess needs, clarify misconceptions, and make appropriate referrals according to individual values and preferences. Ongoing education is also required to ensure healthcare providers, including nurses, provide evidence-based, stigma-free palliative care according to current standards. With a holistic, patient-centered approach, barriers can be overcome to improve quality of life for those living with life-limiting illness and support their loved ones.
\nReferences
\nGott, M., Ingleton, C., Bennett, M. I., & Gardiner, C. (2013). Transitions to palliative care in acute hospitals in England: qualitative study. BMJ, 347. https:\/\/doi.org\/10.1136\/bmj.f1773
\nNational Consensus Project for Quality Palliative Care. (2018). Clinical practice guidelines for quality palliative care (4th ed.). National Coalition for Hospice and Palliative Care. https:\/\/www.nationalcoalitionhpc.org\/ncp
\nNational Institute for Health and Care Excellence. (2022, February 23). Palliative care for adults: Strong opioids for pain relief. https:\/\/www.nice.org.uk\/guidance\/ng140\/chapter\/Recommendations#strong-opioids-for-pain-relief
\nPalliative Care Australia. (2018). National palliative care standards (5th ed.). https:\/\/palliativecare.org.au\/palliativecare-information\/national-palliative-care-standards
\nTemel, J. S., Greer, J. A., Muzikansky, A., Gallagher, E. R., Admane, S., Jackson, V. A., Dahlin, C. M., Blinderman, C. D., Jacobsen, J., Pirl, W. F., Billings, J. A., & Lynch, T. J. (2010). Early palliative care for patients with metastatic non-small-cell lung cancer. New England Journal of Medicine, 363(8), 733\u2013742. https:\/\/doi.org\/10.1056\/NEJMoa1000678
\nWorld Health Organization. (2022, August 23). WHO definition of palliative care. https:\/\/www.who.int\/news-room\/fact-sheets\/detail\/palliative-care
\n#####
\nNRSG374: Principles of Nursing Palliative Approach
\nNRSG374 _ Assessment 1: Professional Development Resource
\nASSESSMENT INFORMATION
\nAssessment Title Assessment Task 1 – Professional Development Resource Narrated PowerPoint
\nPurpose This assessment enables students to demonstrate their understanding of the palliative approach and the promotion of best practice in the clinical area.
\nDue Date Wednesday 13th September, 2023
\nTime Due 14:00
\nWeighting 50%
\nSubmission Submission of the assessment task is via the assessment 1 drop box in the NRSG374
\nLEO site on the \u2018Assessment\u2019 tile.
\nLength Narration length: 10 minutes (+\/- 10%) (Video is not required)
\nPowerPoint slide deck length: 10 slides including a title page and reference slides.
\nAdditional slides will not be accepted.
\nRubric Appendix 1 of the NRSG374 unit outline.
\nThe assessment will be marked using the criteria-based rubric.
\nLEO Resource A national pre-recorded lecture is available on the \u2018Assessment\u2019 tile in the NRSG374 LEO site, which provides students with an overview of the assessment as well as resources and advice on how to approach the task.
\nA national Q&A session will be held during week four (4) of the semester via zoom.
\nThe Q&A session will provide students with the opportunity to clarify any questions,
\nbut the expectation is that students will have viewed the pre-recorded national
\nlecture prior to attending. The date and a link for this session is available on the
\nCommunication and Support tile on the NRSG374 LEO site.
\nStudents are encouraged to post questions on the Assessment 1 Q&A forum on LEO
\nand to check for answers there as a first point of query.
\nLOs Assessed LO1, LO2, LO3, LO5, LO6
\nTask Students will develop a 10-minute narrated PowerPoint based on one (1) of the key topic (sample nursing essay examples by the best nursing assignment writing service)s discussed by the \u2018Survivors Teaching Students\u2019 program.
\nThree \u2018Survivors Teaching Students\u2019 sessions will occur in Week 3. All students are expected to attend at least one of the sessions. Dates and links for these sessions are available on the Survivors Teaching Students tile on the NRSG374 LEO unit. The sessions will also be recorded.
\nThis narrated PowerPoint is to be a professional development resource. The resource is to provide education, information and learning opportunities for final year nursing students and\/or graduate nurses about a palliative care topic (sample nursing essay examples by the best nursing assignment writing service), the nurse\u2019s role and how the National Palliative Care Standards relate to the topic (sample nursing essay examples by the best nursing assignment writing service).
\nApplication of the National Palliative Care Standards and other relevant contemporary evidence-based literature should be used to support the presentation.
\nTarget Audience Final year nursing students and\/or graduate registered nurses.
\nThis is not a resource for the general consumer or community members. Therefore,
\nyou are expected to use professional terminology.
\nNRSG374: Principles of Nursing Palliative Approach
\nNRSG374 _ Assessment 1: Professional Development Resource \u00a9 Australian Catholic University 2023 _ Page 2 of 4
\nTopics Your professional development resource should focus on one of the following key
\ntopic (sample nursing essay examples by the best nursing assignment writing service)s discussed by the \u2018Survivors Teaching Students\u2019 program:
\n1. Barriers to early access to palliative care, including misconceptions and stigma
\n2. Psychological and physical supports to improve quality of life in palliative care
\n3. Family centred care in the palliative environment
\nPowerPoint
\nStructure
\nYour Presentation should follow this format:
\n1. Slide One: Title Slide – State your name, student number and identify which one
\nof the three topic (sample nursing essay examples by the best nursing assignment writing service)s you have chosen to focus your presentation on.
\n2. Slide Two: Provide an introduction, including what you will discuss in the
\npresentation (refer to rubric). Outline the target audience and the learning
\noutcomes for your presentation. Learning outcomes are what your target
\naudience will have learnt\/achieved by the end of your professional development
\nresource.
\n3. Slide Three: Provide an overview of palliative care and the principles of palliative
\ncare, referring to high-quality evidence.
\n4. Slide Four: Provide an overview of the National Palliative Care Standards and
\nidentify and introduce three standards that most relate to your topic (sample nursing essay examples by the best nursing assignment writing service). You will
\nthen be incorporating the three chosen standards in Slides Five, Six and Seven.
\n5. Slides Five: Outline one key learning\/point from the \u2018Survivors Teaching
\nStudents\u2019 program, that relates to your chosen topic (sample nursing essay examples by the best nursing assignment writing service). Link to evidence and the
\nfirst of the three National Palliative Care Standards outlined on Slide Four, to
\nsupport why this is an important point.
\n6. Slide Six: Identify how the key learning\/point identified in Slide Five can be
\nmanaged\/assessed. Support your information by referring to high-quality
\nevidence and the second of the three National Palliative Care Standards outlined
\non Slide Four.
\n7. Slide Seven: Outline the role of the registered nurse regarding the key
\nlearning\/point identified in Slide Five. Support your information by referring to
\nhigh-quality evidence and the third of the three National Palliative Care
\nStandards outlined on Slide Four.
\n8. Slide Eight: Conclusion \u2013 Restate your key points and summarise the information
\npresented.
\n9. Slide Nine: References
\n10. Slide Ten: References
\nFORMATTING
\nRecording your
\nPowerPoint
\nInstructions on how to record a PowerPoint with narration and slide timings can be
\nfound here.
\nRecording your PowerPoint
\n1) Create your assessment in PowerPoint.
\n2) Record your audio assessment in PowerPoint \u2013 DO NOT record a video.
\n3) LEO tech support recommend that students record the PowerPoint in mono
\nsingle channel as this reduces the megabytes for a 10-minute recording from
\n100 megabytes down to 30.
\nSaving your assessment
\nWhen saving your assessment, you must save it in a format that corresponds to
\nNRSG374: Principles of Nursing Palliative Approach
\nNRSG374 _ Assessment 1: Professional Development Resource \u00a9 Australian Catholic University 2023 _ Page 3 of 4
\nTurnitin. File types accepted by Turnitin include: .pptx, .ppt, .ppsx, .pps.
\nDo not submit pdf, MP4 or Mac files.
\nACU has made Microsoft Office 365 available for students for either PC or Mac
\nversions.
\nIf you experience technical difficulties, please review that you have recorded and saved your assessment as instructed above. If you continue to experience difficulties, please contact LEO tech support on Ph. 1800 246 442.
\nFile to submit You are to submit one PowerPoint file. You are not required to submit your script.
\nFont Font size \u2013 no smaller than 18-point.
\nMinimum font size for the reference list is 12-point.
\nFont style \u2013 Calibri, Arial or Times New Roman.
\nHeadings \u2013 you can use headings to support the delivery of information.
\nImages \u2013 you can include images, however, please ensure they support and add
\nvalue to your work. Images need to be referenced using APA7 referencing.
\nREFRENCING
\nReferencing Style APA 7
\nth edition – Please refer to the ACU APA7 Referencing guide for detailed
\ninformation and resources.
\nIntext
\nReferencing
\nThe narrated PowerPoint presentation must include intext citations on the slides.
\nIntext citations should be placed next to their corresponding text, not at the bottom of the slide. It is a requirement that you reference the points on your slides.
\nMinimum
\nReferences
\nA minimum of 15 high quality resources are to be used. All arguments must be
\nsupported using a variety of high-quality primary evidence. Avoid using any one
\nsource repetitively.
\nReference Age Published in the last 5 years unless using seminal text.
\nOrder References are arranged alphabetically by author family name within the reference list.
\nHanging Indent Second and subsequent lines of a reference have a hanging indent.
\nDOI Presented as functional hyperlink.
\nSpacing Single spacing within a reference. A space is required between references.
\nADMINISTRATION
\nLate Penalties Late penalties will be applied from 14:01pm on the due date, incurring 5% penalty of
\nthe maximum marks available up to a maximum of 15%. Assessment tasks received
\nmore than three calendar days after the due or extended date will not be allocated a
\nmark.
\nPenalty Timeframe Penalty Marks Deducted
\n14:01 Wednesday to 14:00 Thursday 5% penalty 5 marks
\n14:01 Thursday to 14:00 Friday 10% penalty 10 marks
\n14:01 Friday to 14:00 Saturday 15% penalty 15 marks
\nReceived after 14:00 Saturday No mark allocated
\nExample:
\nNRSG374: Principles of Nursing Palliative Approach
\nNRSG374 _ Assessment 1: Professional Development Resource<\/p>\n
\u2022 Academic integrity will be monitored in all assessments submitted.
\n\u2022 Use APA7 referencing style and paraphrase adequately.
\n\u2022 Turnitin monitors the use of artificial intelligence.
\n\u2022 Be sure to submit your own work.
\n\u2022 Submit your assessment with enough time to obtain your similarity report from
\nTurnitin and review your citations and paraphrasing to see if they need to be
\nimproved.
\nExtensions All extension request forms need to be submitted electronically to the extension
\napplication drop box on the NRSG374 LEO site on the \u2018Assessment\u2019 tile.
\nThis should normally occur at least 24 hours before the due date and time as
\nper ACU Assessment Procedures \u2013 Section 2 Student Responsibilities. If submitting
\nwithin 24hrs of the prescribed due date\/time – the exceptional circumstances must
\nhave arisen with the 24hrs leading up to the due date\/time.
\nThere is no need to email the LIC to notify them you have submitted an
\nextension request. The extension request drop box is checked Monday to Friday
\nduring normal business hours for new extension requests. Staff will only review
\napplications received in office hours and not on a public holiday.
\nIf your EIP contains provisions for extension to assessment tasks you must still, follow the standard university procedure to apply for an extension. If your reason for seekingan extension is unrelated to the condition identified in your EIP, you may be required to provide evidence of your circumstances.
\nSpecial<\/p>\n
NRSG374 LEO site on the \u2018Assessment\u2019 tile.
\nIf applying for special consideration across multiple units, the special consideration
\nform needs to be forwarded to your Course Coordinator for review.
\nSpecial consideration for one assessment task cannot be submitted before the
\nassessment due date and can only be submitted up to five working days after the
\nrelevant assessment due date.
\nAssessment template project ( help with nursing paper writing from experts with MSN & DNP degrees) informed by ACU student forums, ACU Librarians and the Academic Skills Unit.<\/p>\n
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